desertrat_1960
07-21-2004, 11:59 AM
Hey folks just a heads-up . I ramble on a quite abit here and I'll apoligize now for past and probably future episodes .
My wife has been sick for some time now . Doctors were too
D*&^% stupid and would just give her pills or tell her it's all in her head or age . She suffers severe bloody noses with no warning aches /pain etc. the list goes on . Her doctor asked her if she picked her nose :blast: :blast: :blast: , also told her her pain was job related , or in her head . Health Care Worker for 25+ years .
Well her tests / biopsy came back . She has a severe Liver Disease ( stage 2 ). Turns out this disease fools the body /immune system
into thinking that muscles etc. are causing the condtion . So the immune system attacks the muscles etc. causing severe pain ,
flu-like symptoms and bloody noses . (this is a short list) .
She starts Chemotherapy this week . Man this stuff is just as bad as the disease ! It can cause bone loss, thyroid failure , heart attacks, an extreme form of anemia (fatal) , blindness , and Severe Clinical Depression (suicide is common) .
She has about a 50% or less chance of cure . We won't know for sure for 3 months of treatment .
The hardest part for me is having no control and the very real possibility of her not responding or worse .
To make matters worse ,I'm physically disabled and have PTSD .
Alot of her friends have since bailed saying they can't handle watching her go through this . So our support system ( mental / physical ) is just about non-existent . Even her own twin brother turned on her and will not contact her . The Bast$%# :rant:
Your Prayers will be a great gift to her .
I haven't put a name to this disease but some may recognize it as it of Epidemic Proportions . It also has a stigma attached to it .
NOT " HIV " .
So again I apologize if I've offended anyone here . This is a real stressful time in our lives and has been for some time .
Steve
My wife has been sick for some time now . Doctors were too
D*&^% stupid and would just give her pills or tell her it's all in her head or age . She suffers severe bloody noses with no warning aches /pain etc. the list goes on . Her doctor asked her if she picked her nose :blast: :blast: :blast: , also told her her pain was job related , or in her head . Health Care Worker for 25+ years .
Well her tests / biopsy came back . She has a severe Liver Disease ( stage 2 ). Turns out this disease fools the body /immune system
into thinking that muscles etc. are causing the condtion . So the immune system attacks the muscles etc. causing severe pain ,
flu-like symptoms and bloody noses . (this is a short list) .
She starts Chemotherapy this week . Man this stuff is just as bad as the disease ! It can cause bone loss, thyroid failure , heart attacks, an extreme form of anemia (fatal) , blindness , and Severe Clinical Depression (suicide is common) .
She has about a 50% or less chance of cure . We won't know for sure for 3 months of treatment .
The hardest part for me is having no control and the very real possibility of her not responding or worse .
To make matters worse ,I'm physically disabled and have PTSD .
Alot of her friends have since bailed saying they can't handle watching her go through this . So our support system ( mental / physical ) is just about non-existent . Even her own twin brother turned on her and will not contact her . The Bast$%# :rant:
Your Prayers will be a great gift to her .
I haven't put a name to this disease but some may recognize it as it of Epidemic Proportions . It also has a stigma attached to it .
NOT " HIV " .
So again I apologize if I've offended anyone here . This is a real stressful time in our lives and has been for some time .
Steve